2025-2026 Session
Change SessionH.46
An act relating to the Rare Disease Advisory Council
- Sponsor(s)
- Location
- Senate Rules Committee
- Last Recorded Action
- Senate 5/16/2025 - Read 1st time & referred to Committee on Rules
Bill/Resolution Text
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An act relating to the Rare Disease Advisory Council
Detailed Status
Regular Session 2025-2026
| Body | Date | Journal | Calendar | Location | Full Status |
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An act relating to the Rare Disease Advisory Council
Roll Call History
Regular Session 2025-2026
| Body | Date | Journal | Location | Full Status |
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Although procedurally bills and resolutions are assigned to only one committee at a time, other committees may review the bill or resolution. This page contains results from both the assigned committee as well as other committees.
An act relating to the Rare Disease Advisory Council
Committee Meetings
Regular Session 2025-2026
| Meeting Date | Committee |
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An act relating to the Rare Disease Advisory Council
Meeting Full List
Regular Session 2025-2026
Thursday, March 27, 2025
- Committee(s):
- House Committee on Human Services
- 9:00 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Bill introduction
Rep. Anne B. Donahue, Bill Sponsor
Tuesday, April 15, 2025
- Committee(s):
- House Committee on Human Services
- 2:10 PM
-
H.46 - An act relating to the Rare Disease Advisory Council
Walk-through
Katie McLinn, Legislative Counsel, Office of Legislative Counsel
Wednesday, April 16, 2025
- Committee(s):
- House Committee on Human Services
- 9:00 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Kelly Dougherty, Deputy Commissioner, Department of Health
Carolyn Sheridan, National Organization for Rare Disorders
- 9:45 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Leslie Kanat, National Organization of Rare Diseases, National Fragile X Foundation
- 10:00 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Katie Paquette, Person with Lived Experience
Sarah Elliott, Person with Lived Experience
Suzette James, Parent and Advocate
- 10:45 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Danielle Spadafora, Managing Director, Advocacy - Northeast, The ALS Association
Karin Hammer-Williamson, Care Services Coordinator- Vermont, The ALS Association
Thursday, April 17, 2025
- Committee(s):
- House Committee on Human Services
- 9:30 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Committee discussion and mark-up
Katie McLinn, Legislative Counsel, Office of Legislative Counsel
- 10:00 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Ashley Michaud, Caregiver and Family Member
- 10:30 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Committee discussion and mark-up
Tuesday, April 22, 2025
- Committee(s):
- House Committee on Human Services
- 2:15 PM
-
H.46 - An act relating to the Rare Disease Advisory Council
Richard Page, Dean, Larner College of Medicine at the University of Vermont
- 2:35 PM
-
H.46 - An act relating to the Rare Disease Advisory Council
Committee discussion
Natalie Weill, Public Health Policy Advisor
Tuesday, April 29, 2025
- Committee(s):
- House Committee on Human Services
- 2:00 PM
-
H.46 - An act relating to the Rare Disease Advisory Council
Kelly Dougherty, Deputy Commissioner, Department of Health
Natalie Weill, Public Health Policy Advisor, Department of Health
Wednesday, April 30, 2025
- Committee(s):
- House Committee on Human Services
- 9:00 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Committee discussion and mark-up
Katie McLinn, Legislative Counsel, Office of Legislative Counsel
Friday, May 2, 2025
- Committee(s):
- House Committee on Human Services
- 11:30 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Vote
Nolan Langweil, Principal Fiscal Analyst, Joint Fiscal Office
Thursday, May 8, 2025
- Committee(s):
- House Committee on Appropriations
- 10:15 AM
-
H.46 - An act relating to the Rare Disease Advisory Council
Walk through and possible vote
Katie McLinn, Legislative Counsel, Office of Legislative Counsel
Nolan Langweil, Principal Fiscal Analyst, Joint Fiscal Office
Committee Documents
An act relating to the Rare Disease Advisory Council
Witnesses Who Testified
Regular Session 2025-2026
House Committee on Appropriations
- Nolan Langweil, Principal Fiscal Analyst, Joint Fiscal Office
- Katie McLinn, Legislative Counsel, Office of Legislative Counsel
House Committee on Human Services
- Rep. Anne B. Donahue, Bill Sponsor
- Kelly Dougherty, Deputy Commissioner, Department of Health
- Sarah Elliott, Person with Lived Experience
- Karin Hammer-Williamson, Care Services Coordinator- Vermont, The ALS Association
- Suzette James, Parent and Advocate
- Leslie Kanat, National Organization of Rare Diseases, National Fragile X Foundation
- Nolan Langweil, Principal Fiscal Analyst, Joint Fiscal Office
- Katie McLinn, Legislative Counsel, Office of Legislative Counsel
- Ashley Michaud, Caregiver and Family Member
- Richard Page, Dean, Larner College of Medicine at the University of Vermont
- Katie Paquette, Person with Lived Experience
- Carolyn Sheridan, National Organization for Rare Disorders
- Danielle Spadafora, Managing Director, Advocacy - Northeast, The ALS Association
- Natalie Weill, Public Health Policy Advisor
- Natalie Weill, Public Health Policy Advisor, Department of Health
Fiscal notes and materials available on this web page are provided for informational purposes only, and may not comprise all materials received by the Vermont Legislature or the final fiscal information related to a specific bill. The Legislature is not responsible for the accuracy of any information in these materials, and their posting does not constitute approval or endorsement by the Legislature.
Fiscal Information
Fiscal Notes and Related Documents
No committee of conference members found for H.46 in the Regular Session 2025-2026.
An act relating to the Rare Disease Advisory Council
Committee of Conference Meetings
Regular Session 2025-2026
| Meeting Date | Committee |
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